Evenimente
8.000 de persoane din România suferă de boli rare conform unui comunicat recent al Direcției de Sănătate Publică din București cu ocazia Zilei Internaționale a Bolilor Rare
In Romania, National Institute of Public Health, in collaboration with the Ministry of Health's specialty commissions and the associations of patients with rare diseases, plans to develop the National Registry of Rare Diseases, in line with the recommendations of the European Council on action in this field, according to a press release from the Public Health Directorate of Bucharest Municipality on the occasion of Rare Disease Day, celebrated on February 29th. According to the cited source, there are 8,000 people registered with rare diseases in Romania, but it is estimated that the number is much higher.
28 Feb 2024
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